Sunday, 26 March 2017

Happy Purple Day 2017 - Don't fear the purple!


Happy Purple Day to all my fellow wonderful epilepsy warriors. To celebrate purple day and help spread epilepsy awareness around the world a few of us have decided to reflect on our epilepsy journeys searching for the rays of light amongst the clouds of epilepsy.
So if you enjoy this blog search #PurpleTogether for more inspirational stories shining a positive light on epilepsy.
In the beginning…
My epilepsy journey began 13 years ago, I was 18 years old on a gap year, living life to the full.  Having struggled through school where I didn’t feel I fitted in, I was working hard in a job I loved, had found new friends who accepted me for me, I was enjoying life, probably drinking a bit too much and sleeping far too little but so was everyone else.
One day I was out on a training run and the next thing I remember was waking up lying in a country lane having hit my head and bitten my tongue. I was very confused but managed to stumble home. I presumed I had fainted so didn’t really think much more of it but looking back that was my first tonic clonic seizure I just didn’t realise it.

A few weeks later I went off to university, enjoying freshers week and meeting lots of new people my confidence was growing finally after years of bullying. But then on one of my first athletics training sessions I collapsed again, this time people were with me and I was taken to hospital in an ambulance but discharged a few hours later to walk home.

Armed with witness accounts of the last episode I remember within a few minutes of seeing the neurologist he explained that it was a text book tonic clonic seizure and considering the previous unwitnessed collapse it sounded like I had EPILEPSY.

I remember crying my eyes out, I couldn’t drive I was in a new place miles from home and I might have a seizure again at any time, how was I going to manage this? I felt like the independence and confidence which I had built up over the last year had been robbed from me in an instant. It wasn’t fair.
At that time I was in a pretty bad place, dealing with seizures, medication increases and being miles from home. So what turned it all around? Well it was more of a who… the turning point in my epilepsy journey.
Meeting Stuart
My mum took me to an Epilepsy Action information day in Brighton while I was home for the holidays. That was when I met Stuart.  Stuart is an accredited volunteer for Epilepsy Action and he stood up to tell his story and suddenly something switched in my head, Stuart had used his epilepsy to do so much good and make a difference to others, that was how I could get through this.
Stuart will never realise what a difference he made in my life but on Purple Day while reflecting on my journey I would like to thank him for sharing his story that day and for all his amazing support in the years since then you have become a truly special friend.
Over the years my epilepsy has impacted on my life to different degrees, seizures have happened big and small, my confidence in my own body has gone up and down and the challenges epilepsy posed on things like starting a family, work, driving have varied greatly. But the one things which hasn’t changed is my passion to make a difference to others with epilepsy. 
I’d like to share a few of the projects that I have been involved in over the years as a way to show some of the positives and to raise awareness of epilepsy. If you just chose one to look at further it would be an amazing way to spread awareness on Purple Day 2017.
Epilepsy Action
Not long after meeting Stuart I trained to be an accredited volunteer for Epilepsy Action and over the years I have helped at lots of information events, supported other people affected by epilepsy and given epilepsy awareness presentations to care homes, schools, nurseries and businesses across the south east of England to raise awareness and understanding of epilepsy.
Youth Health Talk
While at university I got involved in an amazing project with Oxford University where young people shared their experiences of epilepsy and other health conditions in videos.  I was interviewed for the epilepsy module but was also asked to be on the youth panel which made decisions on the future of the website and it also meant I met lots of other inspirational young people.
HealthE Mums-to-be
After having our first child and feeling unsupported and alone Epilepsy Action asked me to be involved in their HealthE Mums-to-be campaign which was an amazing opportunity to help support other women through the diaries, interviews and workshops. 
It also introduced me to the amazing Kim Morley the only epilepsy midwife in England who helped make our second pregnancy with Benji a far more positive experience and I can’t thank her enough this purple day.
This Blog

My blog which started as just my way of writing down my experience has turned into so much more, it has allowed me to share my story with so many other women and to help others feel less alone and more empowered in the pregnancies.

The seizure and epilepsy support group
Through my blogging I was approached by the lovely Torie to admin this group with a few others.  This group has given me so much support and also feels like a little family (growing fast).  I feel like the other admins have become really good friends although we have never met I know I can turn to them for advice and they will always make me smile.  The group is amazing and I have made friends there who truly understand what it’s like living with epilepsy.
So I guess what I am saying is if epilepsy hadn’t entered my life I would be a very different person.  From a practical perspective I look after myself better now, I don’t drink much, I make sure I get enough sleep, I eat well and exercise.  But my experiences which have really shaped my life are all because of my epilepsy.  I have also been lucky enough to meet so many amazing people on my epilepsy journey who have made me a better person.
Stronger as a family
I also feel blessed because I met my husband at a time when my epilepsy was at its worst and his support and acceptance of epilepsy showed me what an amazing person he is and that together we’d be able to overcome the challenges life will throw at us.
We are now a little family with our two children who are incredible and I feel epilepsy has played a part in shaping that and making us who we are and I wouldn’t change that for the world. I think my children are more accepting of others health challenges because they have grown up around my own.
Epilepsy impacts on the whole family and while I hate that I have been a burden on my mum and dad over the years when I should have been an independent adult. I think it has also brought us closer together.  My Mum has always been amazing picking me up when I am down (literally and metaphorically) and my Dad has a way of supporting me that is much more practical but equally useful.
Not being able to drive has meant I have spent a lot more time being driven around by others, many would see this as a lack of independence and it was frustrating at times but it was also an amazing chance to talk to the people closest to me and I think brought us closer together. My Grandad before he passed away, my Mum and Rich all drove me places and I feel so thankful to them but I enjoyed that time with them just chatting about life.
So yes epilepsy is awful, it steals your independence and self-confidence, friends leave and seizures hurt, but would I change having epilepsy? No I don’t think I would because if I didn’t have epilepsy I wouldn’t be the person I am today.
Show your support this Purple Day
I am now two years seizure free, something I never thought would happen, will it last who knows, but I make the most of the freedom this seizure freedom gives me.  This year I am running the London Marathon for Epilepsy Action which considering how my journey started is a huge achievement in itself. I am going to run a mile for each of the inspirational people I have met on the way.

Stuart, Torie, Leanne, Vince, Faye, Vicky, Gemma, Linda, Amy, Victoria, Louise, Samantha, Byron, Rebecca, Jamie, Seb, Jessica, Brendan, Jade, Daisy, Melissa, Emily, Hayley, Jane, Lydia (and the last mile and a bit, for everyone who has supported me on my epilepsy journey).
So happy Purple Day to you all, I hope this blog shines a positive light on a condition which is so greatly misunderstood.

16 comments:


  1. An amazing testimony on a Native Iya Hindi root and herbs who help me to get pregnant, So me and my partner have been trying for a baby for the last 2 years now. I don’t have a regular cycle so it is hard for me to tell when I’m ovulating or not, but we always have sex at least 3 times a week, sometimes more. I know it can take up to a year to conceive but everyone i know who have had a baby have conceived within 2-3months of trying and it is really getting to me. my partner had a fertility test about a year ago and his sperm were fine. I’m thinking it could be a problem with me but I’ve never had any symptoms of any problems. My partner does smoke and have the occasional drink, and i used to smoke and also have the occasional drink. i know i’m slightly overweight but that shouldn’t affect our chances too much, one faithful day my friend told me to contact Native Iya Hindi that help her sister, then i contact the email. hindinative@yahoo.com,He sent the Herbs to me and gave instruction on method after three weeks the doctor confirm that i am pregnant thank you Native Iya Hindi for helping me get a baby, I am thankful for all he had done. contact him via email:(hindinative@yahoo.com .Or whats App number+19145295224), if you are trying to get a baby.

    ReplyDelete
  2. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William, it does not have any side effect. I am glad to say that he has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098765@gmail.com)

    ReplyDelete
  3. WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
    my son have been a patient of epilepsy . I had tried a lot of anti viral med prescribed to me by doctors over how many years now but I could not see any improvements in my son symptoms. One day while going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from epilepsy,quickly i contacted him and he prepared a herbal medication for my son which i received and he used it as instructed by dr williams. After few weeks the improvement were very visible. the sleepiness and the abnormal behavior stooped ,on thing now he is so full of life. I would recommend this to all my friends,families,around the globe suffering from epilepsy.you can contact him through his email on drwilliams098765@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN DR WILLIAMS

    ReplyDelete
  4. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,he do have the attack two to three times a week,which is affecting is education and his life.i got the contact of a doctor from the post of one Mr paul thanking him for curing his seizure problem,i got the contact and contacted him then he made me to know that the medication is a permanent cure, and that was how i got the medication which i used on my son,and for six month now there have been no sign of seizure in him again.any one with such problem can contact him on his email drwilliams098675@gmail.com

    ReplyDelete
  5. I am Sophie from Canada, I once suffered from a terrible and Chronic epilepsy ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from epilepsy through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine i used it for 4 weeks as prescribed and i was totally cured of epilepsy within those week of usage,on thin now i have not experience any sign of seizure.if you need his help you can Contact this herbal doctor via his email drwilliams098675@gmail.com for help

    ReplyDelete
  6. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William, it does not have any side effect. I am glad to say that he has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098765@gmail.com)

    ReplyDelete
  7. THANKS TO DR EWOIG FOR CURING MY SON
    My son has partial epilepsy for the past 18 years. Dr's have tried various means but he has seizures almost every month. The first epileptic occurred when he was five years old. i took him to a specialist who subscribed anti-epileptic medication. From then on he had to take four capsules per day, but most of the time he had seizures until I got to know about Dr.ewoig product to cure epilepsy. we order for the product, now i can tell you my son is now living a better life thanks to dr ewoig His herbal remedy is the only permanent solution to Seizure. You can always contact him through his email for more information(drewoig18@gmail.com)

    ReplyDelete
  8. HI,AM DR,OVBIOSUN,THE BEST HERBALIST IN WEST AFRICA.I INHERITS IT FROM MY FOREFATHER AND I HAVE COLLECTED SO MANY AWARDS ON ROOTS AND HERBS.I HAVE SAVE SEVERAL LIFE'S WITH MY ROOTS AND HERBS,SO,I SAID LET ME COME HERE ON THE INTERNET AND SAVE MORE LIFES BECAUSE,MANY PEOPLE HAS TESTIFY AND THEY WANT ME HERE ON THE INTERNET TO SAVE MORE LIFES.AM HERE TO CURE YOU WITH MY ROOTS AND HERBS.I DON'T KNOW IF YOU ARE GOING THROUGH ANY HEALTH CHALLENGES OR WHAT SO EVER, I
    THOUGHT THIS MIGHT BE OF HELP TO YOU.ARE YOU GOING THROUGH THIS PAINS
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    TRANSMITTED INFECTION or BREAK THROUGH IN MARRIAGE or looking for FRUITS OF THE WOMB,contact me on dr.ovbiosunharbalhealinghome@gmail.com or call me or whatsapp me on +2348026422155

    ReplyDelete
  9. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,he do have the attack two to three times a week,which is affecting is education and his life.i got the contact of a doctor from the post of one Mr paul thanking him for curing his seizure problem,i got the contact and contacted him then he made me to know that the medication is a permanent cure, and that was how i got the medication which i used on my son,and for six month now there have been no sign of seizure in him again.any one with such problem can contact him on his email drwilliams098675@gmail.com

    ReplyDelete
  10. My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. she was jerking very violently, and his eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she's had seizures. she had an mri ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, Facebook and website of people that was cured from seizure with the help of a herbal doctor I have even been scammed severally, I explain to my friend about my daughter symptom and she told me that i shouldn't worry, she gave me a contact of a doctor. I met Lawson Bryan in Chicago and i contact him. I Explain about my daughter symptom, I made an order of his medicine.. I followed his instruction, His medicine has change my daughter health in less than 3 month she is totally free from seizures and vomiting, my daughter is cured from seizure. you can contact him on this e-mail: dr.lawson52@gmail.com thank you.

    ReplyDelete
  11. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William,who uses herbal medicine in curing people from epilepsy,i was so glad to contact him on his email and make an order for his medication, it does not have any side effect. I am so glad to say that she has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098675@gmail.com) thanks once again admin for such an informative blog.

    ReplyDelete
  12. I am Sophie from Canada, I once suffered from a terrible and Chronic epilepsy ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from epilepsy through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine i used it for 4 weeks as prescribed and i was totally cured of epilepsy within those week of usage,on thin now i have not experience any sign of seizure.if you need his help you can Contact this herbal doctor via his email drwilliams098675@gmail.com for help

    ReplyDelete
  13. My son started having seizures he had his first seizure at 6 year within 12 hours We spent 6 days in the hospital where different doctors looking at different things couldn’t agree on why he suffered a seizure… He has had genetic tests including a muscle biopsy. I used to wonder why my son were getting so many vaccinations shots at such a young age, Still the doctors wouldn’t admit it was the vaccination shots. After his 2nd seizure I wouldn’t allow my son to be vaccinated anymore but I believe the damage is done. It was during a casual conversation with a friend that I learned about Doctor Lawson Bryan i was so glad to know him on how his herbal product work, I contacted Lawson and explain everything to him and make purchase of his product. few days later i received the herbal medicine my son used it for 3 mouths i notice improvement in less than a month my son was totally cured of seizure now he have not experience any sign of seizure. Contact doctor Lawson Bryan on this + 1 (979) 475-5130 or e-mail dr.lawson52@gmail.com.

    ReplyDelete
  14. I am Shelley from Los Angeles,California, I want to testify on how i got cured from seizure, I have suffered from seizure since the year 2011 with so mush anxiety ,that i have to spend so mush money getting pain relief in the hospital, and I have visited several doctor ,but all to no avail, my world was gradually coming to an end because of the fainting and muscle spasms , until i saw a post in a health forum about a herbal Dr Williams who use herbal portion in curing people from different kind of diseases including seizure, at first i doubted if it we be able to cure my Generalised tonic-clonic seizure , but i decided to give it a try, when i contacted this herbal doctor via his email, he prepared a herbal portion and sent it to me via courier service, when i received this herbal medicine, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was completely free from seizure just for 1 months of usage,i we recommend this to all my friend family in the world today who still suffering from seizure you can contact him through his email on drwilliams098675@gmail.com for help.

    ReplyDelete
  15. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage, Our son's seizure always occur twice in a week according to EEG results. We had used several medicine which include: 600 Epitol 100 Zarontin,
    150 Epitec X2 Daily, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can also contact Dr.William with this email drwilliams098675@gmail.com for advice and his product

    ReplyDelete
  16. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,he do have the attack two to three times a week,which is affecting is education and his life.i got the contact of a doctor from the post of one Mr paul thanking him for curing his seizure problem,i got the contact and contacted him then he made me to know that the medication is a permanent cure, and that was how i got the medication which i used on my son,and for six month now there have been no sign of seizure in him again.any one with such problem can contact him on his email drwilliams098675@gmail.com

    ReplyDelete