Thursday, 1 June 2017

Epilepsy 0 Me 1 ~ finding my confidence again

This post is part of the Epilepsy Blog Relay which will run from June 1 through June 30. Follow along and add comments to posts that inspire you!

6 weeks ago I achieved a lifelong goal I thought I would never be able to achieve due to my epilepsy, I completed the London Marathon.  I haven’t really shared this on my blog so I thought this would be a great opportunity to do just that.

Rewind 12 years…

I was just about to start university and living life to the full, I loved running and my dream was to run the London Marathon one day.  I was walking back from a training run and the next thing I knew I was lying confused and sore in the road… looking back now that was my first seizure.

I went to university and while running with athletics club I collapsed again, this time people saw what happened and a few weeks later a neurologist diagnosed me with epilepsy based on their accounts.  I was in shock and felt like I had lost all confidence in myself along with my independence.

A few weeks later and I had a seizure on a treadmill, that was it, my confidence was completely in tatters and I no longer wanted to do any sport let alone run.

Coming to terms with my diagnosis

There were some dark months when I started medication and came to terms with what living with epilepsy really meant but slowly I started to turn it into a more positive things.  I started to share my story with other through volunteering for Epilepsy Action and the amazing website Youth Health Talk.

Over the years my epilepsy has seemed to settle down only to raise its ugly head again just as my confidence started to improve.  However all the time I have felt that it gave me purpose to help others and that is what kept me going.  I have also met some incredible people on my journey who inspire me every day.

One year seizure free… I want to run a marathon

Finally I was a year seizure free and to celebrate I decided to start training for the London Marathon. Running was pretty scary at first, I was worried about seizures but as I trained I realised that running had a lot of positive effects especially on my mood which my medications tend to impact on.

The more I ran and the further I ran the more confidence I gained in my own body again.  By the time I smashed through the 30km training run mark I felt like I was proving to myself that maybe just maybe my epilepsy might really be controlled, something I have really struggled to believe having lived with seizures for 10 years.

My top tips for running with epilepsy:
  • Always tell someone where you are going for a run and how long you plan to be, having a find your friend app really helps put everyone's mind at ease too.
  • Build up slowly and don't over do it, I started training a year before using the couch to 5k app.
  • Consider a seizure alarm, I have an Embrace epilepsy monitor and it has been great running.
  • Make sure you don't run if you are unwell, haven't eaten or didn't sleep well the night before especially if these are triggers for you.
  • Try mindfulness exercises to help reduce anxiety and help with pre-race nerves.
  • Make sure you are very visible so lots of high-vis clothing and lights for the dark winter nights.
  • Make sure you have water and fuel (gels or sweets) with you specially when running longer distances.
Marathon Day

Training was hard, training was lonely and training really impacted on family time so I was pretty relieved when marathon day arrived as it was the end of a hard six months devoted to slowly building up the miles, trying to avoid triggering a seizure.

But most of all I was so excited, finally I had the opportunity of achieving my life goal.  The atmosphere is amazing and I loved every minute of my marathon run.  The crowds really do carry you most of the way round.  I also dedicated a mile to each of the people I have met on my epilepsy journeys who have inspired me and made me the person I am today.  The final mile I ran for my amazing family, and I was in tears that last mile, tears of joy that I was stronger than epilepsy that I could achieve my goals and that I had made it so far. 

When I crossed that finish line I was in tears, someone asked if I needed a first aider and I said no, these are tears of joy, this just means so much.  Because it really did it marked a huge turning point for me, it helped me to believe my epilepsy was controlled, finally after so many years and I also hope it helps other people with epilepsy aim for their goals whatever they maybe.

Image may contain: 3 people, people smiling, people standing, people sitting and child
So I am sharing this today, hopefully to inspire someone to try something they don’t think they can achieve no matter how big or small that challenge might be because if you succeed suddenly you realise you are stronger than epilepsy and if you don’t quite make it today, tomorrow is a new day and another chance to show epilepsy who is boss.

NEXT UP: Be sure to check out Karen’s post tomorrow at Living Well With Epilepsy for more on epilepsy awareness. For the full schedule of bloggers visit livingwellwithepilepsy.com.

Don’t miss your chance to connect with bloggers on the #LivingWellChat on
June 30 at 7PM ET.

26 comments:

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  5. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William,who uses herbal medicine in curing people from epilepsy,i was so glad to contact him on his email and make an order for his medication, it does not have any side effect. I am so glad to say that she has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098675@gmail.com) thanks once again admin for such an informative blog.

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  7. ..It is possible, it was never meant to be permanent, I use to to suffer epilepsy until i came across a USA base doctor who help me with his herb that make me whole completely. I message him through an email and make purchase of his herbs and now I no longer feel the symptoms. wow the lord is great I am heal and whole.. You can contact him through this email dranthonywilliams03@gmail.com .

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  8. "With Dr Williams,herbal medicine I felt very empowered after my son started his medication and the results came very quickly I might add. Contrary to what my doctor had recommended for my son, (that epilepsy have no permanent cure) I have succeeded in less than 4 weeks to treat all the symptoms associated with my son epilepsy (including the anxiety , and the abnormal behavior ) and within 4 weeks, my son epilepsy was completely gone. Thank you so much for this terrific publication. I also my son have recently experienced a symptom-free of headache , which was nothing short of remarkable, considering the awful state my son was in before I was introduced to dr williams life changing medication,for more information on how to get his medicine you can email him in drwilliam098675@gmail.com

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  9. Dr itua herbal medicine is mighty and genuine,I use to use Mellisa oil and Lavender Healing herbs but result were just still the same.But using Doctor Itua herbal medicine cured my herpes final and I have being living for 3 years now No Sores.My herpes is truely gone.Contact him if you interested of his herbal medicine too Dr itua can as well cure the following....HIV...HERPES,,COPD..FIBROID..ASTHMA..DIABETES..SICKLE CELL...ALS..EPILEPSY,,HEPATTITIS...CANCER...LOVE SPELL ...drituaherbalcenter@gmail.com Or Whatsapp Number On +2348149277967

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  10. I am Sophie from Canada, I once suffered from a terrible and Chronic epilepsy ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from epilepsy through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine i used it for 4 weeks as prescribed and i was totally cured of epilepsy within those week of usage,on thin now i have not experience any sign of seizure.if you need his help you can Contact this herbal doctor via his email drwilliams098675@gmail.com for help

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  11. SAY NO TO AUTISM. I'm so happy today because of the wounder Dr Biodun has done with his autism herbal remedy in curing my 4 years old autistic son, it was hell for me to take good care of him because he always irritates me and i wished i never had him as a child back then he always wee on his body, eyes not straight, deaf so much more i was terrified and put all my hope in God because i have used so many hospital medications but to no avail. until this day when i was online in search of autism treatment for kids, there was a testimony of a woman testifying on how her autistic daughter was cured with the herbs of Dr Biodun i quickly massage the email address she dropped in the testimony (biodunherbal@yahoo.com) and i got a reply from Dr Biodun then i explained to him and he sent me his autism herbal medicine and gave me instructions on how to apply it on my son which i did as he commanded. Behold i watch my son changing gradually day by day while using the herbal cure on him, his voice became clearer, began to see and identify colours, making sentences and a lot of changes occurred, and i never believed that one day my son would be healed from autism embarrassment. contact him today don't be left out there is no harm in trying, believe me or not autism has a cure it is real am a living witness.

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  12. Good day to every one here. i just want to let every one know that there is no problem without solution. I know that so many people do not believe in herbal medicine but i want to prove to you that herbal medicine work very well because i have tested it and it work, My son is a living testimony to this. I want the general public to know how this great man called Dr tokubo cure my son from Epilepsy seizure with the herbal medicine gotten from Dr tokubo, he cures other diseases too like STD, My son own was worst, He have suffered for Epilepsy seizures for 2years. herbal medicine is a great medication that is recommended for everyone. he have a medicine that is 100% percent assured to cure any type of disease and you don't need to spend so much money to get cured . I want you to contact Dr tokubo and stop your worries and go get your herbal medicine now to get your family free from deadly disease. Once again thanks to Dr tokubo you can contact him now via email drtokubotemple@gmail.com or you can whatsapp him on +2349037990322

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  13. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William,who uses herbal medicine in curing people from epilepsy,i was so glad to contact him on his email and make an order for his medication, it does not have any side effect. I am so glad to say that she has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098675@gmail.com) thanks once again admin for such an informative blog.

    ReplyDelete
  14. I am Shelley from Los Angeles,California, I want to testify on how i got cured from seizure, I have suffered from seizure since the year 2011 with so mush anxiety ,that i have to spend so mush money getting pain relief in the hospital, and I have visited several doctor ,but all to no avail, my world was gradually coming to an end because of the fainting and muscle spasms , until i saw a post in a health forum about a herbal Dr Williams who use herbal portion in curing people from different kind of diseases including seizure, at first i doubted if it we be able to cure my Generalised tonic-clonic seizure , but i decided to give it a try, when i contacted this herbal doctor via his email, he prepared a herbal portion and sent it to me via courier service, when i received this herbal medicine, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was completely free from seizure just for 1 months of usage,i we recommend this to all my friend family in the world today who still suffering from seizure you can contact him through his email on drwilliams098675@gmail.com for help.

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  15. As a sign of gratitude for how my son was cured from autism, i decided to reach out to those still suffering from Autism spectrum. My son suffered autism for 7 years and 4 months, it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have difficulty with communication not verbal, and he always complain of poor eye contact, hurt his self, likes music so much. We tried various therapies prescribed by our neurologist but none could cure him. Not until a day when I searched for a cure online and i saw different testimonies of how people are thanking and praising Dr Alwan who has cured their autistic children and so many others with Fallopian tube blockage, infections and diseases problems, and they all left the email of the doctor who had the cure to autism . I never imagined autism has a natural cure but i have no other choice than to contact Dr Alwan and he assured me my son will be fine and then asked me to purchase his autism herbs which i did. Few days later I got the herbal medication he recommended and also gave me instructions and guild lines on how it used. Behold it was amazing, before 2 weeks time i began to see different changes on my son now is perfectly okay, even up till this moment he is so full of life. Autism has a cure and it is an herbal cure contact the doctor for more info on (alwansolution@yahoo.com) on how to get cured of your autistic child. Thanks for reading my testimony.

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  16. Hello viewer my names are Nora Keith from Moline USA. I can’t believe this. A great testimony that i must share to all Cancer patient in the world i never believed that there could be any complete cure for CANCER. Last 2 weeks as i was online searching for a med for my cancer illness i saw people’s testimony on blog sites of how Baba Alika herbs and seeds oil cure for cancer brought them back to life again i had to try it too because i have been through a lot trying to be freed from cancer and you can't believe that in just few weeks i started using the oil after receiving it from Baba Alika through the dhl services, all my pains stop gradually. Right now i can tell you that i am completely cured from the cancer I have been suffering from for many years now. delay in treatment leads to death. contact the great Baba alika on his email:babaalikahealinghome@gmail.com or you can also reach him through his WhatsApp number +2347037748198 for his herbs and seeds oil cure for all kinds of cancer thanks.

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  17. I'm here to share to the worldwide that Dr.onokun is a Powerful Herbal Medicine man. that can cure your disease if you can only contact him and let him help you. I was cured from my fibroid Disease. after suffering since 4years ago. but when i contact him on the internet. he gave me a Natural cure that ended my suffering after using it for two weeks. i went to check myself on the hospital and i was tested negative. I can't more happier but to say thank you sir and i use this medium to say to everyone don't waste any time to contact this powerful herbal Dr,onokun On any Kind of Disease he is Ready to help you. You can reach him through his email: dronokunherbalcure@gmail.com

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  18. WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
    my son have been a patient of epilepsy . I had tried a lot of anti viral med prescribed to me by doctors over how many years now but I could not see any improvements in my son symptoms. One day when going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from epilepsy,quickly i contacted him and he prepared a herbal medication for my son which i received and he used it as instructed by dr williams. After few weeks the improvement were very visible. the sleepiness and the abnormal behavior stooped ,on thing now he is so full of life. I would recommend this to all my friends,families,around the globe suffering from epilepsy.you can contact him through his email on drwilliams098675@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN DR WILLIAMS

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  19. CURE TO EPILEPSY WITHOUT ANY SIDE EFFECT: My son was diagnosed with epilepsy. My son epilepsy was something i don't understand he cry so bad that he was usually in bed for about 8 hours and soreness killers (even prescription strength) don't stop the crying (except taking him out) even if he take triple the dosage. my son symptoms was really so bad,that we have to make hospital our home, and all the doctors would do is monitor it, prescribe him countless of control pills and pain medication with no positive result. until recently I contacted a Doctor who put an end to this problem. If you are having same problem with epilepsy son contact Dr. William for advice and possible solution without any side effect (drwilliams098675@gmail.com

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  20. I myself have epilepsy. Not to this extreme with grand mail seizures daily, but it still affects me in other ways daily. I am on medicine, which has slowly stopped working and I notice my twitches, blank stares, and memory loss (even in the midst of a sentence) starting to return. The side effects of this drug is noticeable and painful to deal with. It is so strong that if a normal person were to take my dose, they will die of an overdose.when i was going through the internet i come across Owens post thanking Dr Lewis hill for curing his seizure problem, and i got the contact of Dr Lewis hill and i quickly contacted him then he made me to know that the medication is 100% cure, and that was how i got the medicine which i used, after which i went for medical test It worked! Over a year now, i have not show any symptoms of seizure and I believe that am cure permanently if you need his help email him on drlewishill247@gmail.com

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  21. Just wanted to say a huge thank you to Dr Williams for everything he have done in my life. I have been in tears for so many years now, having found that my only son is suffering from seizure, lesion after some years of being under extreme stress., . I spent 24 hours freaking out and finally calmed down after reading some testimony on here about Dr Williams herbal medicine to seizure. The moment came and I mumbled out to my husband about Dr Williams product (with a few tears) and he was AMAZE – . He was just worried about our son been free from this disorder that was how will order for Dr Williams product on line , after my son finish taking Dr Williams medicine for just within a period of one month. Will went to the doc together who confirmed that he was seizure free.
    Thank you again for being upfront, truthful and taking this pain away from my family for more information about his product you can email him on drwilliams098675@gmail.com i hope you can also help other terrified people in a similar situation.

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  22. I recently have some difficult conversations and I did what a lot of people do when they want to know how to do something. I googled it. I came across Dr Williams herbal medicine on YouTube so many people thanking him about his good work. I also have epilepsy. I wasn’t running all over God’s creation with every man I could find but here I am. I have felt bad about myself for so many years now because of my epilepsy status. I obviously still have some self-accepting to do but I want to thank Dr Williams for everything he have done for my family ,after taking Dr Williams medicine i was completely free from epilepsy within one month of usage, I think what you are doing is so admirable. you have helped me a lot! I want to definitely reach out to you and thank you for your amazing work. You are a good person, and an extremely talented man. You have helped millions with your herbs, and have really inspired me,and i pray you still continue doing the good work.you can also email him on drwilliams098675@gmail.com for help

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  23. Warm appreciation to Priest Babaka for curing my Hepatitis B Virus with cannabis oil/Herbal Soap Supplement. I really appreciate your help in bringing back my lost life with the help of Cannabis oil/Herbal Soap Supplement, i am so grateful to you Priest Babaka, for all the love and concern that you showed me and i would keep on giving my testimony about your Cannabis oil/Herbal Soap Supplement and how it cures Hepatitis B Virus within 90 days of treatment. it just like a Miracle that has happened to me with full recovery from Hepatitis B Virus and i am free from Hepatitis B Virus. Thanks be to God Almighty for sending you my way Priest Babaka, i hope and know that you would keep on putting smiles on world at large with this great medication. Those facing health challenges should go for Cannabis oil/Herbal Soap Supplement to ensure the absolute cure of all kinds of cancerous diseases. For hopes and help, kindly contact Priest Babaka on his Email: babaka.wolf@gmail.com or facebook at priestly.babaka for full knowledge about the medication and Services

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  24. All thanks to dr omohan He helped me with a fast cure to fibroid and infertility,and the size of it was .7cm, Then I started taking the medication for only one month, and now am completely cured from it. I was able to make it without any surgery, now I can live like every normal human and I can eat any food of my choice If you need such help, contact him via Email dromohanherbalmedicine@gmail.com or whatsapp +2348164816038 for advice,i hope this also help some one out there.

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  25. With Dr Williams herb i was completely free from epilepsy.You are an amazing doctor.Matching diagnosises aside, I just want to be your friend. Lol You inspire me on a feminist level. On an intelligence level. you are a good man doing so much for mankind, level.Thank you for being you.For keeping a lot of us . For reminding us that we aren’t a fucking statistic or a status, we are still PEOPLE. With brains and personalities and jobs and lives.I’ve been diagnosed for so many years now with epilepsy, and the roller coaster of emotions is all too real.I’m sure I speak for everyone here when I say thank you. From the deepest part of my soul. THANK YOU.You give us all an indescribable level of comfort and absurdness in sharing our diagnoses and, almost a green light to continue to celebrate our lives,for you always been there.For every jerk who throws you hate, there are hundreds of us thanking the universe for you.for more information about Dr Williams product to epilepsy you can email him on drwillliams098675@gmail.com

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