Well Wednesday was my epilepsy specialist appointment. I know I say it all the time, but I feel very lucky to have such good care. So where are we at?
I am now on a med change to Keppra. Hopefully it will all go OK, apparently 10% get mood changes, so either depression or snapping at people.
It’s going to take 6 months… it seems like forever, I knew it would take a while to swap but I wasn’t expecting quite that long. I know it’s for the best to do it very gradually but it seems like it’s going to take a long time to get to a base dose which may or may not control my seizures…
I guess the truth of the matter is I’m scared, scared of the possible side effects, scared I’m going to have even more seizures and scared that time is slipping by and it just takes so long to know whether it’s under control.
But I need to take what I learnt at Cherish and be brave. I think I need to focus on helping others and all I can do is wait and see what happens with this med change.