But now she is able to understand so much it has got me thinking maybe I need to start looking at how I can explain to her about my epilepsy and what she needs to do if I have a seizure. It’s such a difficult thing to judge, so far I have never had a seizure while she has been there so if she saw me have a seizure it could really scare her. Knowing what to do could really help but I don’t want to scare her by telling her too much or something she doesn't really understand.
Is 2 just too young? How do I go about explaining something so complicated to her in a simple way? These are all the questions I have started to ask myself. My mum bought me a lovely little book for Christmas which I think is where I am going to start. It is called ‘Epilepsy Book for Kids’ by Layla Reid who is seven and whose mum has epilepsy.
This then got me thinking – everyone’s epilepsy is so different and everyone’s situation is different what would be lovely would be a personalised book for Riley, about my epilepsy – in fact maybe this is something I could actually look into – could I develop personalised books for children whose parents have epilepsy…
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