Monday, 15 August 2016

Medication in pregnancy ~ does the guilt ever go?

When you are pregnant you want to do everything you can to protect your unborn baby.  You watch what you eat and drink, giving up things you loved before just in case it impacts on the life you are growing inside you.  But for those of us who have no choice but to take medication during pregnancy it is a huge weight on our mind throughout those 9 months and beyond.

Pregnancy and the early days

That first scan is so scary, but then so is every scan after that, what if they find something, what if the drugs have affected the baby, I think it’s the only time in life where you want your child to be completely average and I felt blessed that both mine were.

Then they are born and the relief that both my babies we’re ok was huge.  The first few days with Benji were a worry, he didn’t poo straight away and the doctor was questioning whether his digestive tract had developed correctly.  We heard her making irate phone calls to the consultant and the whole time I was sat there thinking maybe this is because I took Keppra in pregnancy.  It turns out he is fine but the worry at the time was very real.

So once they are home I though the guilt would pass, we have two healthy children we could get on with life.

Small problems start to show

But then we noticed Riley’s eyes would sometimes roll outwards, to begin with I thought I was imagining it but by the time she was two others started to notice it too. It turns out she has a divergent squint, she controls it really well and I am so proud of how grown up she is when she goes to the hospital and has her eyes tested.  But in the back of my mind I question why does she have this problem, could it be the lamotrigine I took in pregnancy?  She may need surgery in the future, it’s not a problem that is likely to go away and I worry that other children will notice her eyes and bully her for it.

Then there are her little toes, they are slightly deformed, they are slightly high on her foot and the nails are small and impossible to cut. I have mentioned it to the doctor and we were told they may well bother her when she gets older and require a small surgery to correct them.  But a few weeks ago Riley asked me why her toes are funny, it was because Benji’s are normal so when I cut their nails together I can do his really quickly but with hers I have to get clippers out and try to pull the nail back to cut them and it hurts her.  She asked why her nails were so hard to cut when Benji’s toes were so much smaller and yet his nails were easy to cut…

Finally there is potty training, this has been a complete nightmare, the hardest part of parenting so far for us… we have tried everything.  We have used so many different reward charts, we have got her to clean up the mess, we have used a wobble watch to remind her to use the toilet, we have given her big drinks to try to stretch her bladder and still we have regular accidents.

Don’t get me wrong things are improving, we definitely have less accidents now than 18 months ago but we struggle to go more than 2-3 days without an accident and some days we will have loads.  The health visitors are all out of ideas, nursery are all out of ideas and for a child so bright and articulate it seems strange she can’t grasp a simple concept of using the toilet.

At first it was really hard seeing all her friends just getting it.   But it has gone on for so long now I have learnt to accept it but it is still hard when there are children so much younger than Riley who are successfully potty trained.

There is also so little support out there when you are struggling.  I had to break down in floods of tears to the health visitor to even see them.  We had a scan done and it showed her kidneys are normal but it would appear her bladder is small.  We don’t know why yet but we have finally got a referral to the paediatric urologist, it has taken a long time and a lot of heart ache to get there.  And now I wonder could it be the medication I took in pregnancy which is behind this problem.

Could it be the medication?

The truth is we will probably never know whether these problems are caused by the lamotrigine because while data is collected on major birth defects at birth, small problems like this are not recorded anywhere and without the large data sets you can never tell whether it’s just unlucky that she has these problems or whether it’s due to the drugs.

Of course these little problems wouldn’t have stopped me having a baby because I was taking epilepsy drugs, I wouldn’t change Riley for the world.  I suppose it’s more the guilt that is linked with them, I blame myself for Riley’s problems.  Because no one can tell me either way whether it’s the drugs I blame myself for the decisions I made, like to up my lamotrigine dose during pregnancy because my levels dropped.

It’s also a funny situation because I feel like because Riley and Benji were exposed to different drugs during my pregnancy and Benji doesn’t seem to have these problems that if I had taken the plunge and tried Keppra sooner Riley might not have these problems.  I chose not to try Keppra sooner because I was worried about it effecting my mood because of all the things I had read about it so I feel guilty for that.

What needs to change?

I suppose what I am trying to say is that more needs to be done to record the long term effects of medication on children exposed to it in uterus. Drug companies need to take more responsibility for their medications so women can have all the facts available to them.  I wouldn’t have chosen not to have children because of these small problems but now I feel guilty for every problem my children have, it would be good to know which are linked to the medications and which aren’t and just to receive better support and understanding from health professionals.

There is so much information on the risks of smoking and alcohol in pregnancy and at the end of the day there is no need for women to smoke and drink in pregnancy (and the risks seem pretty obvious) yet there is so much data on the risks.  But for medications that many women have no choice but to risk in pregnancy the data just isn’t being collected and that seems wrong somehow.

18 comments:

  1. I had an epileptic fit for the first time 5 years ago in the middle of supermarket on my birthday of all days, wasn't fun for my kids to see it, it still haunts, I've tried many anticonvulsants and had never been able to stop the seizures. Surgery was not an option. I was still an epileptic patient, who have completely lose hope. As the problem is always embarrassing and disturbing. While surfing the internet one fateful day, I learned about Doctor on the internet called Lawson. I contacted him with some info and I ordered for the Herbal medication and used the medication for 6 months, though hesitantly, considering the fact that I have done a lot of procedure. After which I went for medical test It worked! I've been seizure free, Over a year now, I have not show any symptoms of seizure and I believe I am cure if you want to contact him at this email dr.lawson52@gmail.com.+1(936) 657-1274

    ReplyDelete
  2. My son recently started having grand Mal seizures at 16 years old. We were prescribed Kepler. We decided NOT to take the medicine and go with a Modified Atkins Diet that entails feeding our son 15 carbs a day with lots of healthy fat. He eats a lot of grass fed beef, free range eggs, organic low crab veggies and is doing fantastic! We could tell a difference in him by the 3rd day. This is not alternative or junk science. Dr. Lewis hill at Johns Hopkins has been championing this diet for years and has been really successful. Doctors are really resistant to this therapy but it works!. Read "Grain Brain" for why it works. He also takes taurine which helped stop the night time teeth grinding, jerking, and unrest in his sleep (also known to stop seizures). And he takes cur cumin as a brain protestant that raises seizures.one day came across Albert post thanking Dr Lewis hill for curing his son seizure problem, and i got the contact of Dr Lewis hill i quickly contacted him then he made me to know that the medication is 100% permanent cure, and that was how i got the medicine which i used for my son, after which i took my son for medical test It worked! Over a year now, my son have not show any symptoms of seizure and I believe my son is cure if you need his help email him on drlewishill247@gmail.com or call him on +1(323)244-4884

    ReplyDelete
  3. I had my first seizure. I was in high school and didn't want anyone to know that I had epilepsy. I had seizures on two occasions. I was so ashamed and didn't want people to think that something was wrong with me. I finally got to the point where I told people that I had epilepsy. I came to the place that I realized that I had to own my epilepsy or it would control me. Epilepsy hadn't really affected my life until about 9 years ago after my first child was born... I am a wife and mother of two beautiful children. I have lived with epilepsy for 20 years Yet, my life has been dramatically impacted by epilepsy. I had search for cure online without no hope. I met a Man called DR Lewis hill, i contact him I made an order of his medicine and I do not experience seizure anymore i was cured form it. So if you are in the same situation as mine contact him on this email drlewishill247@gmail.com or call him +1 (323)244-4884

    ReplyDelete
  4. I finally nailed my grand-mal seizures. I was 17 years old when I was diagnosed of tonic-clonic seizure; and suffered from it for 15 years. It became so frequent; I had more than 20 seizures in a day. I was having emotional difficulties dealing with the diagnosis; my social life was extremely affected. Every time I had seizures, my life was put on hold. Before my eyes my dreams to be an NBA star was crashing down. I took all prescribed recommended western medication for recovery and had all manner of complications, in my liver. I gave up on taking such medications and wanted something that will not add to my problem which was hard enough to deal with. I did rapid search on where I could find a cure; I was tired of treatment. I was ready to deal with my situation. Fortunately for me, I saw a testimony of herbs used in curing epilepsy without complications, I did further finding, contacted the Dr. made used of his herbal medication within a space of 1month, my frequent seizures disappeared, the progress has remained after 3 years. Tired complications and want a cure, take a step! You may contact Mohan where I got my cure through drajaymohanbose@gmail.com

    ReplyDelete
  5. After years of being seizure free, I think I owe the world a duty to share this testimony. It could help someone out there who needs to be free from seizures like me.
    It started as a minor seizure. I was scared when I had my first seizure. First it was at the tonic phase till it became more complicated that I woke up in ER. That was when I was 9 years old. I had questions without answers. My friends who never understood what I was going through abandoned me because they were shy, and too embarrassed to associate with me. The seizures became frequent that I had more than 50 seizures a day. For 31 years I took thousands of Western Medication. It got more complicated that I had to make effort so it will not become epilepsy according to research. I went in search for a cure because I was feed up of treatments and drugs. A lot of folks told me there was no cure to seizure; that the best I could get was treatment to manage it, but I just refused to believe them. Thankfully, I read about Herbal medication for seizures and epilepsy cure. I discussed with my doctor, he permitted me to try if it will work because Western Medication had dealt with me badly. When I started using Herbal Medication the seizures was longer frequent! Within a one month, I noticed tremendous changes I never had for 30 years of using English Medicine. After several months of using Herbal medication, I became totally seizure free. For 5 years and counting, I have never had seizure not even for a second. I have been reaching out to people with seizures telling them my story how they can get cured through Herbal medication that worked for me. I got my herbal medication from Doctor Mohan. You may contact the doctor via drajaymohanbose@gmail.com

    ReplyDelete
  6. I had my first seizure. I was in high school and didn't want anyone to know that I had epilepsy. I had seizures on two occasions. I was so ashamed and didn't want people to think that something was wrong with me. I finally got to the point where I told people that I had epilepsy. I came to the place that I realized that I had to own my epilepsy or it would control me. Epilepsy hadn't really affected my life until about 9 years ago after my first child was born... I am a wife and mother of two beautiful children. I have lived with epilepsy for 20 years Yet, my life has been dramatically impacted by epilepsy. I had search for cure online without no hope. I met a Man called DR Lewis hill, i contact him I made an order of his medicine and I do not experience seizure anymore i was cured form it. So if you are in the same situation as mine contact him on this email drlewishill247@gmail.com

    ReplyDelete
  7. MY BABY DEFEATED SEIZURE
    I have to share this story; it could help someone out there. A mother, father or loved one facing stigma caused by epilepsy and seizure. There is hope. Thank you to the Admin of this blog for sharing this story.
    Joan was born a healthy baby until after 6 months when her seizure started. We took her to the hospital where doctors diagnosed her of seizure disorder. She had more than 50 grand-mal seizures in a single day. It was terrible for our little angel. Doctors gave us Pharma meds upon meds. (Phenobarb and Keppra) which caused her more complications. She was so young that the side-effects were really bad on her. We went back to the hospital where doctors told us that she might not survive more than 24 months. I and my husband went in search for better treatment that will reduce her complications and keep her alive. We never gave up on her. We started searching for at least a treatment without Pharm meds. Fortunately for me, I came across a testimony shared by Brenda Coker on how her baby was cured from epilepsy using HILTON herbal medication. I followed the email she shared and also read Dr. Mohan blog. We realized that there was hope for our baby. We started HILTON treatment, she responded very well, and became Seizure free after 5 months of Herbal medication. Joan is 5 years now and never had any seizure. She survived doctors’ predictions of 24 months.
    As a mother, I am here to encourage people with seizure or epilepsy to contact Doctor Mohan for a cure read more about his Herbal meds via www.seizurecure.blogspot.com

    ReplyDelete
  8. I myself have epilepsy. Not to this extreme with grand mail seizures daily, but it still affects me in other ways daily. I am on medicine, which has slowly stopped working and I notice my twitches, blank stares, and memory loss (even in the midst of a sentence) starting to return. The side effects of this drug is noticeable and painful to deal with. It is so strong that if a normal person were to take my dose, they will die of an overdose.when i was going through the internet i come across Owens post thanking Dr Lewis hill for curing his seizure problem, and i got the contact of Dr Lewis hill and i quickly contacted him then he made me to know that the medication is 100% cure, and that was how i got the medicine which i used, after which i went for medical test It worked! Over a year now, i have not show any symptoms of seizure and I believe that am cure permanently if you need his help email him on drlewishill247@gmail.com

    ReplyDelete
  9. I am Matthias lang, from Orlando u s a, i suffered from epilepsy for 28 years, i lived in pain with the knowledge that i wasn't going to ever be like every normal human, i contacted so many doctors on this issue,and i have use so many western drugs prescribe by various doctors and all was no avail, because i was determined to get my life back, one day i was researching for this on internet and i saw a post about devansh herbal health care who cure different manners of diseases, including epilepsy, I contacted him via email: devanshherbalheathcare@gmail.com and made purchase of the epilepsy herb, i received the herb through USPS within 24 hours, when i received the herb i applied it as prescribed, and to god be the glory i was totally cured of epilepsy within 1 months of usages,my dear brothers and sisters You do not have to suffer more just contact him for his medicine on devanshherbalheathcare@gmail.com.com he will definitely put an end to that problem of yours

    ReplyDelete
  10. My son recently started having grand Mal seizures at 16 years old. We were prescribed Kepler. We decided NOT to take the medicine and go with a Modified Atkins Diet that entails feeding our son 15 carbs a day with lots of healthy fat. He eats a lot of grass fed beef, free range eggs, organic low crab veggies and is doing fantastic! We could tell a difference in him by the 3rd day. This is not alternative or junk science. Dr. Lewis hill at Johns Hopkins has been championing this diet for years and has been really successful. Doctors are really resistant to this therapy but it works!. Read "Grain Brain" for why it works. He also takes taurine which helped stop the night time teeth grinding, jerking, and unrest in his sleep (also known to stop seizures). And he takes cur cumin as a brain protestant that raises seizures.one day came across Albert post thanking Dr Lewis hill for curing his son seizure problem, and i got the contact of Dr Lewis hill i quickly contacted him then he made me to know that the medication is 100% permanent cure, and that was how i got the medicine which i used for my son, after which i took my son for medical test It worked! Over a year now, my son have not show any symptoms of seizure and I believe my son is cure if you need his help email him on drlewishill247@gmail.com

    ReplyDelete
  11. I had my first seizure. I was in high school and didn't want anyone to know that I had epilepsy. I had seizures on two occasions. I was so ashamed and didn't want people to think that something was wrong with me. I finally got to the point where I told people that I had epilepsy. I came to the place that I realized that I had to own my epilepsy or it would control me. Epilepsy hadn't really affected my life until about 9 years ago after my first child was born... I am a wife and mother of two beautiful children. I have lived with epilepsy for 20 years Yet, my life has been dramatically impacted by epilepsy. I had search for cure online without no hope. I met a Man called DR Lewis hill, i contact him I made an order of his medicine and I do not experience seizure anymore i was cured form it. So if you are in the same situation as mine contact him on this email drlewishill247@gmail.com

    ReplyDelete
  12. My daughter suffered from a terrible seizure for more than 9 years which started after she turned 7 we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and screamed most times. She usually tells me she feel pain. This were steady pain that disrupted her entire life, even at night she screams even more because the seizure become painful because everywhere is quiet and she slept less because of this. I was able to contact Dr.lewishill. on the matter and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have seizure, do not hesitate to contact him on drlewishill247@gmail.com for advice and for his product. I hope this helps someone out there.

    ReplyDelete
  13. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,he do have the attack two to three times a week,which is affecting is education and his life.i got the contact of a doctor from the post of one Mr paul thanking he for curing his seizure problem,i got the contact and contacted him then he made me to know that the medication is a permanent cure, and that was how i got the medication which i used on my son,and for six month now there have been no sign of seizure in him again.any one with such problem can contact him on his email drwilliams098765@gmail.com

    ReplyDelete
  14. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage, Our son's seizure is constant throughout the day according to EEG results. We had used several medicine which include: 600 Epitol 100 Zarontin,
    150 Epitec X2 Daily, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can also contact Dr.William with this email drwilliams098765@gmail.com for advice and his product

    ReplyDelete
  15. seen is believing his product is by far the best plan for treating epilepsy naturally…the practical step by step instructions and the detailed information regarding the real cause and how to treat epilepsy were a real eye opener. my son was a victim of it but to god be the glory,will started dr paul medication after intense fainting and seizures which occurred during school period when i was call that my son was rush to the hospital, I was advised by 3 different doctors to undergo surgery and treatment to make my son fine as an epilepsy patient,but all to not avail . Luckily, I ran into dr paul by accident as I was searching for information on the net regarding my son condition. I was so relieved to have found that the he has cure several cases and have natural herb to end it for eternity, the herb was send to me after all the due process directed by dr paul herbal portion and following his instruction, for taking the herbs, after taking it for 5 weeks ,will went for check up and i am assuring you that was the end, 100% gone, dr paul medication, had shown that is the best natural cure for epilepsy. if you are having the same illment, you can contact him on his wonderful work @ email address on drpaulsolutionhome12@gmail.com or cell phone +2348130071458 for advice and for his product

    ReplyDelete
  16. seen is believing his product is by far the best plan for treating epilepsy naturally…the practical step by step instructions and the detailed information regarding the real cause and how to treat epilepsy were a real eye opener. my son was a victim of it but to god be the glory,will started dr paul medication after intense fainting and seizures which occurred during school period when i was call that my son was rush to the hospital, I was advised by 3 different doctors to undergo surgery and treatment to make my son fine as an epilepsy patient,but all to not avail . Luckily, I ran into dr paul by accident as I was searching for information on the net regarding my son condition. I was so relieved to have found that the he has cure several cases and have natural herb to end it for eternity, the herb was send to me after all the due process directed by dr paul herbal portion and following his instruction, for taking the herbs, after taking it for 5 weeks ,will went for check up and i am assuring you that was the end, 100% gone, dr paul medication, had shown that is the best natural cure for epilepsy. if you are having the same illment, you can contact him on his wonderful work @ email address on drpaulsolutionhome12@gmail.com or cell phone +2348130071458 for advice and for his product

    ReplyDelete
  17. seen is believing his product is by far the best plan for treating epilepsy naturally…the practical step by step instructions and the detailed information regarding the real cause and how to treat epilepsy were a real eye opener. my son was a victim of it but to god be the glory,will started dr paul medication after intense fainting and seizures which occurred during school period when i was call that my son was rush to the hospital, I was advised by 3 different doctors to undergo surgery and treatment to make my son fine as an epilepsy patient,but all to not avail . Luckily, I ran into dr paul by accident as I was searching for information on the net regarding my son condition. I was so relieved to have found that the he has cure several cases and have natural herb to end it for eternity, the herb was send to me after all the due process directed by dr paul herbal portion and following his instruction, for taking the herbs, after taking it for 5 weeks ,will went for check up and i am assuring you that was the end, 100% gone, dr paul medication, had shown that is the best natural cure for epilepsy. if you are having the same illment, you can contact him on his wonderful work @ email address on drpaulsolutionhome12@gmail.com or cell phone +2348130071458 for advice and for his product

    ReplyDelete
  18. WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
    my son have been a patient of epilepsy . I had tried a lot of anti viral med prescribed to me by doctors over how many years now but I could not see any improvements in my son symptoms. One day while going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from epilepsy,quickly i contacted him and he prepared a herbal medication for my son which i received and he used it as instructed by dr williams. After few weeks the improvement were very visible. the sleepiness and the abnormal behavior stooped ,on thing now he is so full of life. I would recommend this to all my friends,families,around the globe suffering from epilepsy.you can contact him through his email on drwilliams098675@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN DR WILLIAMS

    ReplyDelete