Today is purple day and a great chance to raise some awareness about epilepsy and what living with it really means.
Epilepsy is so much more than just seizures and it's impact is not just on the person with epilepsy but everyone who loves that person to.
It's the unpredictability of it, yes seizures are awful, they knock you back and make you feel awful for hours and even days.
But it's the fact you never know when a seizure might happen that means you are always on edge, constantly risk assessing.
The longer you go without a seizure the more your confidence grows but then if epilepsy does hit again it knocks all that back.
So many times I have thought I had won only to be knocked back again by epilepsy. But epilepsy will never win I won't let it stop me living my life, having the family I want, riding my horse, skiing.
This purple day I am seizure free for 16 months and driving again. I have 2 beautiful children and feel confident again I hope epilepsy doesn't steal that confidence but you know what if it does I will fight back again.
Happy Purple Day to all those fighting epilepsy and all those supporting us in that fight.
Share your stories proudly and build awareness.
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