Epilepsy Resources

 Click on the logo to link to page:

 Epilepsy Action For information on epilepsy and a range of services to support both individuals and their families living with epilepsy

 UK Epilepsy &Pregnancy Register They aim is to find out which type of epilepsy treatment women are taking while they are pregnant, and to collect information on the health of their babies after delivery. By registering you will help doctors give the best advice possible to you and to other women who are thinking of becoming pregnant

Remap A very special charity, working through a nationwide network of dedicated volunteers. They use their ingenuity and skills to help people with disabilities to achieve much-desired independence in some aspect of their lives, or to enjoy leisure opportunities previously closed to them..

Epilepsy Society For information on epilepsy and a range of services to support both individuals and their families living with epilepsy                                 

Young Epilepsy (formally NCYPE)  Aims for better futures for young lives with epilepsy. Residential school and college as well as information service targeted at young people and their families.

Epilepsy Bereaved Working towards prevention of deaths from epilepsy through raising awareness and promoting research into SUDEP

Epilepsy Research UK Information about epilepsy and current research into the condition 

Matthew’s Friends Aid’s and support’s parents with managing the Ketogenic Diet and provides up to date information about the diet.

 Healthtalkonline lets you share in other people's experiences of health and illness.

Epilepsy Support Dogs is a UK charity dedicated to improving the quality of life for people with epilepsy, physical disabilities and children with autism by training dogs to act as efficient and safe assistants. 

NHS Expert Patients Programme is a self-management programme for people who are living with a long-term health condition             

Epilepsy Nice Guidelines sets the standards for high quality healthcare  


Book: The Music Room by William Fiennes

William Fiennes describes his childhood alongside a brother suffering from epilepsy and brain damage.


Film: First Do No Harm

When the Reimuller's young son Robbie begins to experience violent epileptic seizures, the prognosis is grim. There only hope is a special 'Ketogenic' diet , which has astonishing results with other children with epilepsy. 


  1. This comment has been removed by a blog administrator.

  2. Dear Clair,

    How’s it going? I’m Mason Perry, an intern for Lifey Health, a company based in Provo, UT. We collect survey responses and take videos of people with health conditions and then post them on our website to share with others who unfortunately deal with that health condition. Our purpose is to collect the info and the freely share it out in hopes that it will be an asset to others dealing with said health condition. We hope to make them more informed, feel more comfortable, and to know someone out there is with them.

    One health condition that I chose to work on is epilepsy. For the past 2 months, I have been collecting surveys and talking with people who have dealt with this unfortunate illness. I noticed that you have a blog about epilepsy, and I was wondering if I could ask a favor of you! We would love to include your blog on our epilepsy blog list! We would also really love to include a link to our epilepsy page (lifey.org/epilepsy) on your website too! If you are interested, feel free to reply to this e-mail and let me know! Thanks so much!


    Mason Perry
    Sponsor Liaison
    Lifey Health Intern