Epilepsy Resources

 Click on the logo to link to page:

 Epilepsy Action For information on epilepsy and a range of services to support both individuals and their families living with epilepsy

 UK Epilepsy &Pregnancy Register They aim is to find out which type of epilepsy treatment women are taking while they are pregnant, and to collect information on the health of their babies after delivery. By registering you will help doctors give the best advice possible to you and to other women who are thinking of becoming pregnant

 
Remap A very special charity, working through a nationwide network of dedicated volunteers. They use their ingenuity and skills to help people with disabilities to achieve much-desired independence in some aspect of their lives, or to enjoy leisure opportunities previously closed to them..

 

Epilepsy Society For information on epilepsy and a range of services to support both individuals and their families living with epilepsy                                 

Young Epilepsy (formally NCYPE)  Aims for better futures for young lives with epilepsy. Residential school and college as well as information service targeted at young people and their families.

Epilepsy Bereaved Working towards prevention of deaths from epilepsy through raising awareness and promoting research into SUDEP

Epilepsy Research UK Information about epilepsy and current research into the condition 

Matthew’s Friends Aid’s and support’s parents with managing the Ketogenic Diet and provides up to date information about the diet.

 Healthtalkonline lets you share in other people's experiences of health and illness.

                  

Epilepsy Support Dogs is a UK charity dedicated to improving the quality of life for people with epilepsy, physical disabilities and children with autism by training dogs to act as efficient and safe assistants. 

NHS Expert Patients Programme is a self-management programme for people who are living with a long-term health condition             

Epilepsy Nice Guidelines sets the standards for high quality healthcare  

 

Book: The Music Room by William Fiennes

William Fiennes describes his childhood alongside a brother suffering from epilepsy and brain damage.

 

Film: First Do No Harm

When the Reimuller's young son Robbie begins to experience violent epileptic seizures, the prognosis is grim. There only hope is a special 'Ketogenic' diet , which has astonishing results with other children with epilepsy.