Thursday 31 July 2014

The funny thing about memory

Ok, so I struggle with people's names, I mean really struggle and it has been shown that Temporal lobe epilepsy (like mine) affects that sort of memory.  It is something which makes me so so anxious and so something which I am very aware of.

I helped at mini camp at the pony club I used to go to and it was really strange. I managed to remember 7 children's names only being told them once.  It wasn't the child I could link the name to, it was the pony...

There must be something in that... I just wish I knew what and how I could use it day to day... other than making everyone ride around on a pony.

So here's Riley on a pony (so I never forget her name!)

Sorry it has been so long

I can't believe I haven't written anything for so long. Time just seems to be flying by and I guess quite a lot has been going on in my life.

I'm going to start with Riley and how amazing she is. At the moment she is just learning something new everyday.  The most amazing thing is how fast her speech is developing.  She was a bit behind in her speech when she turned 2 but it seems like she has just skipped the sticking 2 words together stage and is now talking in full sentences! Everyday she learns new words, I just can't keep up with her!

The second main thing going on is this meds change.  I am now 2 weeks away from being on the maintenance dose of Keppra and have started weaning off my Lamotrigine.  It's all going ok, no major seizures at the moment which is good.

I just feel so so tired though. It is very difficult to judge whether I'm feeling low because of the Keppra or just because I am so tired. I just can't be bothered sometimes and I have been a bit snappy at times but again I think it's just because I am tired.  The main thing is that should get better.  I think I just need to be patient and give it time.  (I have a lot more to write on this subject but I am tired and can't put it down in words right now).

I have had some little panic attack things and one focal seizure... things just seem a little unsettled at the moment but hopefully everything will be settled by Christmas time.

I'll leave you with a picture of Riley, can't believe how fast she is growing up.

Photo: We found the Gruffalo!