My neurology appointment ~ all is good :)

So as I said my neurology appointment was on Wednesday as I thought not much was said really.  Things are all settled which is good so we decided that we wouldn’t change anything at the moment.  Maybe after we’ve had another baby if we want one.  The problems I have with my stomach I can live with and so it seemed easiest just to stay on the Lamotrigine for the foreseeable future.  I'm going to have a chat with my GP about the long term side effects of Movicol but I think it is ok to use long term and I'm also going to have another try at coming off it, will stop the Folic Acid and vitamin D and then be good, no tea, lots of water and see what happens...

But the good thing is it would seem things are settled and in the future when Riley is a bit bigger and we have decided on whether we want another baby we can rethink.  I'm going to continue to see the specialist 6 monthly which is a relief because I am so thankful for the fantastic care I now get I don't want to go back to how things were before, where if things went wrong I had no one to turn to...