Tuesday, 14 May 2013

Epilepsy Week ~ Next Week (from the Epilepsy Action website)

National Epilepsy Week – 19-25 May 2013: lets get myth busting!


This year’s National Epilepsy Week is fast approaching and we have a range of activities taking place throughout the week.

Myth-busting

We want to use the week as an opportunity to highlight some of the myths that exist about epilepsy.  The PR and campaigns team will be tackling myths throughout National Epilepsy Week.  We’ll be posting information on our website each day to highlight the truth about some of the issues people with epilepsy told us about.
To help improve understanding about these myths we will be launching an online myth-busting quiz too. You can share it with your friends and colleagues and challenge people you know to find out how epilepsy aware they are.

Some of the issues we’ll be looking at include:
•    Epilepsy and going to the gym or leisure centre.
•    Myths about seizure triggers.
•    Epilepsy and blood donation.
•    Epilepsy and laser hair removal.
•    Driving and epilepsy.

We want to help people to challenge the myths about epilepsy, especially if they are being treated unfairly. During National Epilepsy Week we’ll be telling you how to challenge out-of-date policies or rules that have stopped you from taking part in an activity or accessing a service.

Read all about it in The Guardian ~ There will be a supplement in the Wednesday 22 May edition including a range of stories and features to help raise awareness of epilepsy. We're going to be in there!

Epilepsy Action Edwards ~ recognise up to 10 education establishments, in the UK, who are providing a supportive learning environment to pupils or students with epilepsy.

New bus adverts ~ The adverts will feature real people affected by epilepsy and will be displayed on the inside of 50 buses in the Bath area for around two months.

Some Events confirmed for National Epilepsy Week:

Saturday 18 May ~ treatment options event in Llanelli.  The day will give information to people with epilepsy about the options for treatment beyond medication in difficult to control epilepsy
 
Sunday 19 May ~ Chiltern Hills Classic Vehicle Rally, near Aylesbury.

Monday 20 May ~ We're running an epilepsy-awreness training course for Dyfed-Powys Police.

Monday 20 May ~ Collection and awareness event at London Waterloo railway station.

Wednesday 22 May ~ Ann, our national manager for Wales, will be doing a radio phone with an epilepsy specialist nurse on Mon FM (listen online) between 11am and 1pm.

Wednesday 22 May ~ With a local epilepsy specialist nurse, we're running an advice and information event in the atrium of James Cook University Hospital in Middlebrough.

Wednesday 22 May ~ There's a bridge tea event taking place at Manton village hall near Oakham in Rutland.

Thursday 23 May ~ We're holding an advice and information day in Llanelli shopping centre.

Thursday 23 May ~ We're holding street collections in Newbury and Guildford.

Friday 24 May ~ We'll be making presentations to winners of the Edwards 2013.

Saturday 25 May ~ Collection and awareness event at London Euston railway station.  I'll be there :)

Saturday 25 May ~ We're running a treatment options event in Belfast. The day will give information to people with epilepsy about the options for treatment beyond medication in difficult to control epilepsy.

Saturday 25 May ~ We're running a tombola and awareness event in the Prospect shopping centre in Hull.

All week ~ Our Aberystwyth branch will have epilepsy awareness displays in different locations across the town.  They will also be presenting six doctors' surgeries with our primary care packs and GP packs to engage more with local people and healthcare providers in the area.

Wednesday 29 May ~ We're running a collection at the Morrison's store in Guiseley, Leeds.

Thursday 30 May ~ We're running a collection and doing bag-packing at the Morrison's store in Yeadon, Leeds.

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