Please don't get me wrong with this post... I feel really lucky to have gone 2 years without a major seizure, my epilepsy is pretty well controlled and I feel blessed for that. Most of the time I'm really positive about it all. But sometimes like I am sure everyone does I get that fear, this is just me writing that down. So hope you don't mind...
It’s been 2 years now since my last major seizure, in fact over 2 years, the day came and went without me even noticing… it got me thinking what does that mean, the fact I no longer keep track of my seizure free time?
It’s been 2 years now since my last major seizure, in fact over 2 years, the day came and went without me even noticing… it got me thinking what does that mean, the fact I no longer keep track of my seizure free time?
Is
it because I haven’t been completely seizure free? I am still having
the occasional partial seizure but I can live with them… it’s just when I
have one it sort of scares me into thinking I might have a major
seizure. In a way at the moment I don’t feel confident enough in my
seizure control to drive even if I did go a year with nothing, so on the
bright side at least I still keep my disabled bus and rail card
otherwise travel would cost an arm and a leg. Yesterday I was on the
bus and found out a return to Redhill about 30minutes away had gone up
from £4.60 to over £6!
I
read a blog the other day by a girl who had been in her car when she
had her first seizure and by some miracle didn’t hurt anyone. Her blog
was really moving, it voiced what I always felt, that I could never
trust myself enough to drive. I thought it was just me being a bit
pathetic feeling like I shouldn’t ever drive again but it turns out I am
not alone. Here’s a link to it:
Or
maybe it’s because I have gone 2 and a half years before without having
a seizure and then had one for no good reason… maybe it just doesn’t
mean much, maybe 3 years will be a big day… or maybe I just can’t trust
my brain 100%, maybe there will always be a part of me that worries I
could have one any moment and with no warning.
I think for me the fear fades and my confidence grows as time goes on, the anniversaries don’t mean so much.
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